As we move into the evening hours at home, Caroline is having some additional pain in her legs, as well as a full body rash (both common from this treatment). So far, we've been able to manage both the pain and itching with meds at home.
Major kudos to everyone on her medical team at Vanderbilt. Caroline is officially the FIRST patient at Vandy to ever receive this medicine! Her team worked diligently to prepare for any and all potential risks/side effects, and it showed. We're beyond thankful to the doctors, nurses, child life specialist, and pain management team for being ready to roll today.
Caroline will now get a day to rest/recover at home before her next scheduled infusion on Wednesday.
Caroline will now get a day to rest/recover at home before her next scheduled infusion on Wednesday.
We will continue to update the blog along the way...
You are all so brave..........and you have a wonderful team of people doing everything they can for your sweet girl..........sending positive thoughts and prayers to all of you
ReplyDeleteContinued prayers and thoughts. Thank you for keeping us updated here in Green Bay!
ReplyDeleteSending love and prayers
ReplyDeleteSending our love. Always praying.
ReplyDeleteWhat an amazingly strong girl. Bless Caroline and you, her incredibly strong family. ❤️
ReplyDeletePraying for you and your family sweet Carolyn
ReplyDeletePrayers for your family.
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