Next steps:
- bone marrow biopsy tomorrow (6/27)
- meet with her medical team on Friday (6/28) to review potential treatments or clinical trials available locally and around the country
- MIBG injection and scan (7/2 and 7/3 respectively)
November 2017: diagnosed with Stage IV, High-Risk Neuroblastoma; Nov 2017-April 2019: completed standard treatment protocol / no evidence of disease; April 2019-April 2021: enrolled in/completed DFMO clinical trial; April 2022: RELAPSE; April 2022-June 2023: completed relapse treatment protocol / no evidence of disease (again); June 2023-June 2024: enrolled in “compassionate use” high-dose DFMO clinical trial; June 2024: RELAPSE #2