Hello friends and family!
Caroline is back in school, playing YMCA soccer, starting Daisy Scouts, faithfully cheering on her brother (who is playing multiple sports!), and overall doing well. Her next round of progress scans are scheduled for early October; we will update the blog with results.
With standard treatment behind us, our family has spent a lot of our free time giving back to the pediatric oncology community, and especially at Vanderbilt. Most recently, Caroline was asked to participate in the Rascal Flatts Celebrity Golf Classic! Please join us in donating to Team Caroline & Levi for Vanderbilt’s fundraising drive. Let’s beat the other team and win this one!
November 2017: diagnosed with Stage IV, High-Risk Neuroblastoma; Nov 2017-April 2019: completed standard treatment protocol / no evidence of disease; April 2019-April 2021: enrolled in/completed DFMO clinical trial; April 2022: RELAPSE; April 2022-June 2023: completed relapse treatment protocol / no evidence of disease (again); June 2023-June 2024: enrolled in “compassionate use” high-dose DFMO clinical trial; June 2024: RELAPSE #2