Monday, April 8, 2019

Final Week of Standard Treatment / "Scanxiety"

Caroline is finishing up the last few days of her 6th Round of Immunotherapy...the final round of "Standard Treatment Protocol" for Stage 4, High-Risk Neuroblastoma. It has taken 17 LONG months to get here. She will take her final dose of oral medication on Wednesday evening, right before bedtime, and then get ready for a long day of testing on Thursday.

Busy week ahead!
  • Wednesday: MIBG Radioactive Injection, EKG, Hearing Test, Clinic Visit/Labs
  • Thursday: Sedated for hours to complete a CT Scan, MIBG Scan and a Bilateral Bone Marrow Biopsy
  • Friday: Clinic visit to find our scan test results and consult with Caroline's medical team to determine next steps. 
Since Caroline's diagnosis, our family has learned to live with a heightened sense of "anxiety" on a regular basis.  However, this week in particular, we are all beyond anxious.  It's been dubbed "scanxiety," and it's definitely a REAL thing.  We are asking for specific prayers for some sense of peace, a safe round of test prep/tests, and of course a NED (no evidence of disease) report on Friday!

We will post an update on this blog as soon as we can.

Thank you for your continued prayers and support; you all have really pushed us along this journey!
The Lantz Family
#carolinestrong
#ftgf

First time back in a pool since 2017!

6 comments:

  1. Praying, especially the "Prayer for Protection" The light of God surrounds me; The love of God enfolds me; The power of God protects me;The presence of God watches over me; Wherever I am, God is and all is well. (Unity) Scatanzaro

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  2. YOUR DAUGHTERS STORY HAS TOUCHED MY HEART. I BELIEVE IN THE POWER OF PRAYER AND FACEBOOK IS A GREAT WAY TO GET AS MANY PRAYERS AS SHE NEEDS. I BRLIEVE AND I DECLARE IN THE NAME OF JESUS THAT THOSE SCANS WILL SHOW NOTHING. STAY STRONG IN YOUR FAITH AND DONT ALLOW NEGATIVE THOGHTS NEAR YOU. SHE WILL BE OK. NOTHING WILL BE WRONG. SHE WILL GET A MIRACLE IN JESUS NAME AMEN

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  3. Prayers for complete peace and no evidence of disease! We know there are plans for Caroline to do great things as she has overcome tremendous things. We know all things are possible through God. He is the great healer and has her in His hands! Prayers for you all!

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  4. All of you certainly will have my prayers. I have found comforting Philippians 4:6-7. " Do not be anxious about anything but pray about everything. Bring your requests to God in petition and Thanksgiving and His peace that surpasses all understanding will guard your heart and mind as you live in Jesus Christ"
    God bless you all

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  5. Praying for your family today. God is good and in control.

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  6. I was praying for you all a lot.

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