November 2017: diagnosed with Stage IV, High-Risk Neuroblastoma;
Nov 2017-April 2019: completed standard treatment protocol / no evidence of disease;
April 2019-April 2021: enrolled in/completed DFMO clinical trial;
April 2022: RELAPSE;
April 2022-June 2023: completed relapse treatment protocol / no evidence of disease (again);
June 2023-June 2024: enrolled in “compassionate use” high-dose DFMO clinical trial;
June 2024: RELAPSE #2
Sunday, January 7, 2018
Just Saying Hello
Nothing much to report, so we just wanted to post a quick hello! Caroline is holding steady and staying isolated inside, which seems to be working for now...
Staying strong, that’s great. Keep the visitors at bay during this flu season; the flu shot has not been very effective this season, hug your girl a lot and get out the board games. Praying everyday
Praying for an awesome week for you all. Love Me. Sherri and Ms. Amber
ReplyDeleteStaying strong, that’s great. Keep the visitors at bay during this flu season; the flu shot has not been very effective this season, hug your girl a lot and get out the board games. Praying everyday
ReplyDelete