After consulting with the Vanderbilt medical team (among others), and looking at all safe and reasonable options for care, here is where we have landed for Caroline's treatment plan:
- 9/23 - 9/27: Inpatient Treatment
- Cyclophosphamide (chemotherapy) each day, Mon-Fri
- Topotecan (chemotherapy) each day, Mon-Fri
- Naxitamab (immunotherapy) on Tues and Thus
- 9/30 and 10/2: Outpatient Treatment
- Naxitamab (immunotherapy) only
Caroline will probably lose her hair again, in addition to all the other harsh, common side effects - nausea, diarrhea, fever, immunosuppression, joint pain, cough, exhaustion, etc. She will most likely be out of school for at least 1.5 - 2 weeks, depending on how she's feeling.
Beyond that, the schedule would be to repeat that same cycle again in 4 weeks, then re-scan Caroline to see if we are getting any positive response.
Margaret has resigned from her job and will focus on making sure Caroline is getting everything she needs during this very difficult time. Mark and Andrew will also be there every step of the way to support C as she goes through this ugliness once again.
Thank you for all the messages of encouragement, prayers, and offers to help! This all just stinks, and we really appreciate knowing that we aren't fighting this alone.
The Lantz Family
#carolinestrong
#ftgf
Ways to help